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Table 1 Included studies by data source, data type, measure type, and information used to measure undocumented status

From: Documenting legal status: a systematic review of measurement of undocumented status in health research

Author(s), year

Title

Study size (n)

Study population

Data typec

Measure typed

Piece of information used

Direct data sourcesa

 Bacallao and Smokoski, 2009

Entre dos mundos/between two worlds: bicultural development in context.

26

Mexican adolescents and their parents

Qualitative—interviews

Unknown

Unknown

 Bacallao and Smokoski, 2013

Obstacles to getting ahead: how assimilation mechanisms impact undocumented Mexican immigrant families.

10

Undocumented Mexican immigrant families

Qualitative—interviews

Unknown

Unknown

 Brabeck and Guzman, 2009

Exploring Mexican-origin intimate partner abuse survivors’ help-seeking within their sociocultural contexts.

75

Mexican immigrant and Mexican-American women survivors of domestic violence

Survey—investigator-initiated

Unknown

Unknown

 Campesino et al., 2009

Counternarratives of Mexican-origin women with breast cancer

10

Monolingual Spanish-speaking immigrants receiving breast cancer treatment

Qualitative—interviews

Self-reported

Self-reported undocumented status

 Cartwright, 2011

Immigrant dreams: legal pathologies and structural vulnerabilities along the immigration continuum.

196

Mexican immigrants

Qualitative—ethnography

Unknown

Unknown

 Cavazos-Rehg et al., 2007

Legal status, emotional well-being and subjective health status of Latino immigrants.

143

Latino immigrants

Survey—investigator-initiated

Proxy

Concern about deportation

 Chandler et al., 2012

No me póngan mucha importancia: care-seeking experiences of undocumented Mexican immigrant women with chronic illness.

26

Undocumented Mexican immigrant women

Qualitative—ethnography, interviews

Unknown

Unknown

 Chavez, 2012

Undocumented immigrants and their use of medical services in Orange County, California.

1201

Residents of Orange County, CA

Survey—investigator-initiated

Self-reported

Self-reported legal status

 Chen, 2009

Predictors of breast examination practices of Chinese immigrants.

135

Chinese immigrant women

Survey—investigator-initiated

Self-reported

Unknown

 Chu et al., 2003

Effects of post-migration factors on PTSD outcomes among immigrant survivors of political violence.

875

Immigrant survivors of political violence

Clinical—clinical intake interviews

Self-reported

Unknown

 Cleaveland, 2010

We are not criminals: “social work advocacy and unauthorized migrants.”

32

Latino day laborers

Qualitative—ethnography, interviews

Unknown

Unknown

 Coffman et al., 2009

Self-prescription practices in recent Latino immigrants.

19

Latino immigrants

Qualitative—focus groups

Unknown

Unknown

 Dang et al., 2012

Sociocultural and structural barriers to care among undocumented Latino immigrants with HIV infection.

22

Undocumented Latino immigrants

Qualitative—interviews

Unknown

Unknown

 Deb-Sossa et al., 2013

Experiences of undocumented Mexican migrant women when accessing sexual and reproductive health services in California, USA: a case study

8

Undocumented Mexican immigrant women

Qualitative—interviews

Self-reported

Unknown

 Dillon et al., 2013

Acculturative stress and diminishing family cohesion among recent Latino immigrants.

405

Cuban, Colombian, Honduran, Nicaraguan, and Venezuelan immigrants

Survey—investigator-initiated

Self-reported

Self-reported undocumented status

 Flores et al., 2006

Why are Latinos the most uninsured racial/ethnic group of US children? A community-based study of risk factors for and consequences of being an uninsured Latino child.

1100

Latino parents

Survey—investigator-initiated

Self-reported

Unknown

 Fuentes-Afflick and Hessol, 2009

Immigration status and use of health services among Latina women in the San Francisco Bay Area.

710

Latina women mothers who recently gave birth

Survey—investigator-initiated

Self-reported

Self-reported undocumented status

 Fuentes-Afflick et al., 2006

Use of prenatal care by Hispanic women after welfare reform.

3957

Latina women mothers who recently gave birth

Survey—investigator-initiated

Self-reported

Self-reported undocumented status

 Goldman, 2005

Legal status and health insurance among immigrants.

1056

Residents of Los Angeles County, CA

Survey—Los Angeles Family and Neighborhood Survey

Self-reported

Self-reported legal status

 Guendelman et al., 2005

Overcoming the odds: access to care for immigrant children in working poor families in California.

4440

Children and adolescents

Survey—California Health Interview Survey

Self-reported

Unknown

 Guh et al., 2011

Missed opportunities to prevent tuberculosis in foreign-born persons, Connecticut, 2005–2008.

346

Immigrants with suspected TB

Clinical—surveillance data

Self-reported

Unknown

 Hadley et al., 2008

Hunger and health among undocumented Mexican migrants in a US urban area.

430

Mexican immigrants

Survey—investigator-initiated

Self-reported

Self-reported legal status

 Heyman et al., 2009

Healthcare access and barriers for unauthorized immigrants in El Paso County, Texas.

52

Undocumented immigrants

Unknown—interviews

Unknown

Unknown

 Holmes and Marcelli, 2012

Neighborhoods and systemic inflammation: high CRP among legal and unauthorized Brazilian migrants.

307

Brazilian immigrants

Survey—ethnography, interviews

Self-reported

Unknown

 Holmes, 2006

An ethnographic study of the social context of migrant health in the United States.

n/a

Migrant farm workers

Qualitative—investigator-initiated

Unknown

Unknown

 Ingram et al., 2010

Experiences of immigrant women who self-petition under the Violence Against Women Act.

21

Immigrant women who filed VAWA self-petitions

Qualitative—interviews, focus groups

Unknown

Unknown

 Loue et al., 2005

Welfare and immigration reform and use of prenatal care among women of Mexican ethnicity in San Diego, California.

157

Mexican immigrant and Mexican-American women

Qualitative—interviews

Unknown

Unknown

 Maldonado et al., 2013

Fear of discovery among Latino immigrants presenting to the emergency department.

1007

Undocumented Latino immigrants

Survey—investigator-initiated

Self-reported

Self-reported legal status

 Marín et al., 2009

Evidence of organizational injustice in poultry processing plants: possible effects on occupational health and safety among Latino workers in North Carolina.

200

Poultry workers

Survey—investigator initiated

Unknown

Unknown

 Marshall et al., 2005

Health status and access to health care of documented and undocumented immigrant Latino women.

197

Latina immigrants

Survey—investigator-initiated

Self-reported

Self-reported legal status

 Momper et al., 2009

The prevalence and types of gambling among undocumented Mexican immigrants in New York City.

431

Undocumented Mexicans

Survey—investigator-initiated

Unknown

Unknown

 Montealegre et al., 2005

HIV testing behaviors among undocumented Central American immigrant women in Houston, Texas.

182

Undocumented Central American immigrant women

Unknown—investigator-initiated

Unknown

Unknown

 Montealegre et al., 2012

Prevalence of HIV risk behaviors among undocumented Central American immigrant women in Houston, Texas.

210

Central American immigrants

Survey—investigator-initiated

Self-report

Unknown

 Morano et al., 2013

Latent tuberculosis infection: screening and treatment in an urban setting.

357

TB patients

Clinical—baseline clinical interview

Unknown

Unknown

 Nandi et al., 2008

Access to and use of health services among undocumented Mexican immigrants in a US urban area.

431

Undocumented Mexican immigrants

Survey—investigator-initiated

Self-reported

Unknown

 Negi, 2013

Battling discrimination and social isolation: psychological distress among Latino day laborers.

150

Latino day laborers

Qualitative—investigator-initiated

Proxy

Personal or population characteristic

 Ordoñez, 2012

Boots for my Sancho’: structural vulnerability among Latin American day labourers in Berkeley, California.

10

Latino day laborers

Qualitative—ethnography

Unknown

Unknown

 Ornelas et al., 2013

Perceived barriers to opportunity and their relation to substance use among Latino immigrant men.

291

Latino immigrant males

Survey—investigator-initiated

Self-reported

Unknown

 Ortega et al., 2007

Health care access, use of services, and experiences among undocumented Mexicans and other Latinos.

42,004

Adults in California

Survey—California Health Interview Survey

Self-reported

Self-reported legal status

 Pivnick et al., 2010

Accessing primary care: HIV+ Caribbean immigrants in the Bronx.

55

HIV-positive Caribbean immigrants

Survey—ethnography, interviews

Self-reported

Self-reported undocumented status

 Potochnik et al., 2010

Depression and anxiety among first-generation immigrant Latino youth: key correlates and implications for future research.

281

First-generation Latino immigrant youth

Survey—investigator-initiated

Self-reported

Unknown

 Prentice et al., 2005

Immigration status and health insurance coverage: who gains? Who loses?

2130

Residents of Los Angeles County, CA

Survey—Los Angeles Family and Neighborhood Survey

Self-reported

Self-reported legal status

 Standish et al., 2010

Household density among undocumented Mexican immigrants in New York City.

404

Undocumented Mexican immigrants

Survey—investigator-initiated

Self-reported

Unknown

 Stevens et al., 2010

Health insurance and access to care for families with young children in California, 2001–2005: differences by immigration status.

37,236

Families with children in California

Survey—California Health Interview Survey

Unknown

Unknown

 Valdez et al., 2013

Why we stay: “immigrants’ motivations for remaining in communities impacted by anti-immigration policy.”

25

Mexican immigrant parents

Qualitative—focus groups

Proxy

Personal or population characteristic

 Vargas-Bustamante et al., 2012

Variations in healthcare access and utilization among Mexican immigrants: the role of documentation status.

51,048

Representative sample of CA

Survey—California Health Interview Survey

Self-reported

Self-reported legal status

 Walter et al., 2004

Masculinity and undocumented labor migration: injured Latino day laborers in San Francisco.

40

Day laborers

Qualitative—ethnography

Unknown

Unknown

 Yoshikawa et al., 2008

Access to institutional resources as a measure of social exclusion: relations with family process and cognitive development in the context of immigration.

181

Dominican, Mexican, and Black mothers of 24-month-old children

Survey—investigator-initiated

Proxy

Possession of institutional resources

Indirect data sourcesb

 Achkar et al., 2008

Differences in clinical presentation among persons with pulmonary tuberculosis: a comparison of documented and undocumented foreign-born versus US-born persons.

194

TB patients

Clinical—medical records

Proxy

Unknown

 Appleby et al., 2008

The impact of immigration on psychiatric hospitalization in Illinois from 1993 to 2003.

13,408

Individuals admitted to public psychiatric hospitals

Clinical—state hospital Clinical Information System

Proxy

Social Security number

 Dubard and Massing, 2007

Trends in Emergency Medicaid expenditures for recent and undocumented immigrants.

48,391

Immigrants receiving Emergency Medicaid

Administrative—state Medicaid data

Proxy

Type of health insurance

 Hacker et al., 2011

The impact of Immigration and Customs Enforcement on immigrant health: perceptions of immigrants in Everett, Massachusetts, USA.

52

Immigrants

Qualitative—focus groups

Unknown

Unknown

 Korinek et al., 2011

Prenatal care among immigrant and racial-ethnic minority women in a new immigrant destination: exploring the impact of immigrant legal status.

300,000+

Women who gave birth in Utah

Administrative—Utah population database

Proxy

Possession of institutional resources

 Leclere et al., 2012

The jornalero: perceptions of health care resources of immigrant day laborers.

20

Day laborers

Qualitative—interviews

Proxy

Personal or population characteristic

 Linden et al., 2012

Kidney transplantation in undocumented immigrants with ESRD: a policy whose time has come?

132

ESRD immigrant patients

Clinical—patient survey

Proxy

Social Security number

 Lowry et al., 2010

Possibilities and challenges in occupational injury surveillance of day laborers.

160

Day laborers

Clinical—hospital trauma registry

Proxy

Social Security number

 Mitchell et al., 2012

Who will cover the cost of undocumented immigrant trauma care?

36,525

Patients diagnosed with trauma

Clinical-quantitative —data extraction (e.g., insurance files)

Proxy

Type of health insurance

 Poon et al., 2013

Treatment outcomes in undocumented Hispanic immigrants with HIV infection

1620

HIV-positive Hispanic immigrants

Clinical—patient survey

Proxy

Social Security number

 Rasmussen et al., 2013

The subjective experience of trauma and subsequent PTSD in a sample of undocumented immigrants.

212

Individuals presenting at US ports of entry

Qualitative—interviews

Proxy

Personal or population characteristic

 Reed et al., 2005

Birth outcomes in Colorado’s undocumented immigrant population

5961

Women who gave birth in Colorado

Administrative—linked Medicaid and birth certificate data

Proxy

Type of health insurance

 Stimpson et al., 2013

Unauthorized immigrants spend less than other immigrants and US natives on health care.

NA

Medical care expenditures

Survey—Medical Expenditure Panel Survey

Self-reported

Statistical modeling

  1. aDirect data sources are those collected directly from participants for the purpose of classifying their legal status (n = 48)
  2. bIndirect data sources are those collected for research or data purposes other than classifying individuals’ legal status (n = 13)
  3. cSurvey data is collected through structured survey methods (n = 28). Qualitative data is collected through semi- or unstructured qualitative methods (n = 18). Administrative data is collected from governmental records (n = 4). Clinical data is collected for purpose of providing health care (n = 9). Those marked unknown could not be determined (n = 2)
  4. dSelf-reported are those in which participants provided explicit information related to their legal status (n = 26). Proxy measures are those in which data were used to derive an approximation of participants’ legal status (n = 15). Those marked unknown could not be determined (n = 20)